• unfollow
• on team
• add to favorites
• edit question
• delete this question

On Quora - A Question is already Asked "In Ryan White Care Act HIV/AIDS service agencies, there is a conflict of interest""...

Full Question on Quora:

In Ryan White Care Act HIV/AIDS service agencies, there is a conflict of interest with non-client centered case management that is systemically ill affecting the livelihoods of persons with disabilities. Where does one go to instill policy change?

URL:

https://www.quora.com/unanswered/In-Ryan-White-...

This is an address written to The United Nations Enable Convention for Rights For Persons With Disabilities requesting "Optional Protocol" to be applied to the NATIONAL ORDER of Ryan White Care Act Agencies to force our rights to be enabled and respected.

http://myhivteam-com.webdomains.realuphuman.net...

Full Question on Quora:

In Ryan White Care Act HIV/AIDS service agencies, there is a conflict of interest with non-client centered case management that is systemically ill affecting the livelihoods of persons with disabilities. Where does one go to instill policy change?

URL:

https://www.quora.com/unanswered/In-Ryan-White-...

This is an address written to The United Nations Enable Convention for Rights For Persons With Disabilities requesting "Optional Protocol" to be applied to the NATIONAL ORDER of Ryan White Care Act Agencies to force our… read more

add tags: Ryan White Service Provider #ConspiracyExposed #ConspiracyExposedTerminatesASAP Convention for Rights for Persons With Dsabilities CRPD

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

What's the best way to tell family and friends of your HIV status?

Would you tell them individually, at gatherings or all at once using social media?

Would you tell them individually, at gatherings or all at once using social media?

add tags:

view all answers (4)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

klt1563 said:

Well Dezell, good luck with that. From what I've seen & I've seen a lot, family gathering are the worst times too announce your status. I won't list my reasons for saying that, after all it's your choice, not mine. Good Luck.
Kevin

Mentioned Users

×

posted 33 minutes ago  

hug useful?

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Disclosure

Anyone have problems with disclosure? And how do people overcome it??!?!

Anyone have problems with disclosure? And how do people overcome it??!?!

add tags:

view all answers (3)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

ShawnTaylor said:

I work in the insurance industry so I have to work with disclosures all the time. As long as the individual is trustworthy the disclosure process is fine. If for some reason you don't trust then I would recommend that you don't do it. You have to be comfortable with it 1st.

Mentioned Users

×

posted about 21 hours ago  

hug useful? (1)

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Can the Berlin Patient's "Cure" Be Replicated?

amfAR-funded European research consortium aims to find out.

When the scientific community learned in a 2009 article in The New England Journal of Medicine that a man known as “the Berlin patient” had been cured of HIV, the news ushered in a new era of HIV research, one underpinned by the knowledge that curing HIV is possible.

But a single person represents an anecdote, and many questions remained unanswered. What are the best ways to measure a vanishingly small amount of virus to confirm that none remains? What were the key elements of his treatment that led to the cure? And most importantly, could this case be replicated?

amfAR addressed the first question by bringing together a team of researchers to intensively study the blood and tissues of Timothy Brown, the Berlin patient, who has been remarkably generous with his body and his time in the service of science. We also brought together another team of researchers to compare every available assay that could quantify low levels of persistent viral reservoir.

amfAR subsequently funded three separate teams to more closely interrogate the circumstances and procedures that led to Timothy Brown’s cure. One of those researchers, Dr. Timothy Henrich, followed the two so-called “Boston patients,” who, after unusually long delays, experienced viral rebound, confirming that their transplants DID NOT cure their HIV infection.

The groundbreaking work conducted by amfAR’s ICISTEM consortium has been recognized by two prestigious awards. Dr. Maria Salgado, a researcher from the IrsiCaixa AIDS Research Institute in Barcelona, Spain, was presented with the inaugural Dominique Dormont Award during the International ADIS Society Conference on HIV Science in Paris in July 2017. And Dr. Jon Badiola of the Virgen de las Nieves University Hospital in Granada, Spain, was presented with a Best Young Abstract Award at the Annual Meeting of the European Society for Blood and Marrow Transplantation in March 2018.
As ever in science, even disappointing results are an opportunity to learn new facts. Scientific findings were increasingly suggesting that the genetic mutation in the donor stem cells that Timothy Brown received were a vital, perhaps even foundational, element of his cure. Another grantee, Dr. Jonah Sacha, concluded that the rejection reaction of the transplanted cells against the recipient

amfAR-funded European research consortium aims to find out.

When the scientific community learned in a 2009 article in The New England Journal of Medicine that a man known as “the Berlin patient” had been cured of HIV, the news ushered in a new era of HIV research, one underpinned by the knowledge that curing HIV is possible.

But a single person represents an anecdote, and many questions remained unanswered. What are the best ways to measure a vanishingly small amount of virus to confirm that none remains? What were the key elements of his… read more

add tags: #cure #Berlin #research #amfAR

view all answers (2)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

VernSheldonWitter said:

To replicate how they made this "cure" happen, it might cost more than the national debt.
http://www.amfar.org/understanding-berlin-patient/

Mentioned Users

×

posted about 11 hours ago  

hug useful?

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

New Research Points to Multi-Faceted "Cure" - if there ever will be one

New research by amfAR grantee Dr. Dan Barouch and colleagues at Beth Israel Deaconess Medical Center in Boston further supports the idea that an HIV cure is likely to require a combination of agents rather than just one. It also offers further evidence of the potential role of antibodies in curing HIV.

Barouch’s study involved a group of macaque monkeys infected with SHIV, a combination of HIV and SIV (the simian form of the virus). The researchers found that those monkeys that had been given a broadly neutralizing antibody called PGT121 combined with an immunotherapeutic drug that may act as a latency-reversing agent experienced a significant delay to viral rebound after being taken off antiretroviral treatment. They also rebounded to lower levels of virus.

While the findings are extremely encouraging, the researchers cautioned that the results are very preliminary in relation to a cure for HIV. Dr. Barouch reported on his findings at the 2018 Conference on Retroviruses and Opportunistic Infections in Boston in February.

In a previous study reported in the August 2017 issue of the Journal of Virology, Dr. Barouch, along with colleagues from the Ragon Institute of MGH, MIT, and Harvard in Cambridge, MA, the National Institutes of Health in Bethesda, MD, and Leidos Biomedical Research and Frederick National Laboratory Center for Cancer Research in Frederick, MD, used a “passive immunization” approach to explore the potential role of antibodies in curing HIV infection.

This study also involved monkeys infected with SHIV. The monkeys were treated with either PGT121 or another antibody know to have anti-HIV properties called N6, a combination of both, or a placebo. The antibodies reduced the viral load in the monkeys.

The researchers then measured SHIV DNA in the blood and lymph nodes to see if the antibodies had any effect on infected cells. They found significantly reduced levels of SHIV DNA in the blood two weeks after the antibodies were administered; in the lymph nodes, SHIV DNA dropped markedly after 10 weeks.

These results suggest that passive immunization using these antibodies might, under the right conditions, kill cells of the persistent viral reservoir and thus play a role in curing HIV.

New research by amfAR grantee Dr. Dan Barouch and colleagues at Beth Israel Deaconess Medical Center in Boston further supports the idea that an HIV cure is likely to require a combination of agents rather than just one. It also offers further evidence of the potential role of antibodies in curing HIV.

Barouch’s study involved a group of macaque monkeys infected with SHIV, a combination of HIV and SIV (the simian form of the virus). The researchers found that those monkeys that had been given a broadly neutralizing antibody called PGT121… read more

add tags: #research #cure #Hiv

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

VernSheldonWitter said:

I am not so sure that this particular virus will ever be eradicated. Usually retroviruses-the class the HIV virus falls under,are virtually impossible to get rid of due to the rapid mutation rate. Personally, I am satisfied with being undetectable. This is about as good as it is likely to get.

Mentioned Users

×

posted about 11 hours ago  

hug useful?

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• unfollow
• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Long-Term survival guilt?

I've known of my status since the late 70's, I was forced to come-out about it too my family after I collapsed at work, was hospitalized and was expected to die within weeks. Obviously, I didn't but I would repeat this scenario, THREE more times. The last time being just 3 years ago. After I informed my family members, many of them prepared for the day I would die but life can be strange, because suddenly other members of my family started becoming sick ( not from AIDS/HIV ) & dying. I've had 4 first cousins die from illnesses in the past 18 months. So, I found myself standing over the bodies of people who I expected to be standing over mine. I'm having REAL trouble dealing with this. Question; does it sound like I'm suffering from Survivor's Guilt?

I've known of my status since the late 70's, I was forced to come-out about it too my family after I collapsed at work, was hospitalized and was expected to die within weeks. Obviously, I didn't but I would repeat this scenario, THREE more times. The last time being just 3 years ago. After I informed my family members, many of them prepared for the day I would die but life can be strange, because suddenly other members of my family started becoming sick ( not from AIDS/HIV ) & dying. I've had 4 first cousins die from illnesses in the past… read more

add tags: Long-term survival

view all answers (3)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

VernSheldonWitter said:

Absolutely. It sounds like the same feelings that drove me into Psychoanalysis in the late 80s. I still live with Survivor Guilt Syndrome-or as I call it "Why Me" syndrome. However my analyst equipped me with the tools I needed to deal with it.

Mentioned Users

×

posted about 11 hours ago  

hug useful? (1)

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

Happy Birthday!

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Would you date someone who is HIV-, and if so, are there struggles?

Having a partner who is HIV- seems to have some frustrations at times. I find there are times where I can get quite frustrated because above all else, I just need someone who understands. So I will leave the question open... Would you date someone who is HIV-? If so, have you ever had frustrations or struggles with the fact that you are HIV+ and they are HIV-?

Having a partner who is HIV- seems to have some frustrations at times. I find there are times where I can get quite frustrated because above all else, I just need someone who understands. So I will leave the question open... Would you date someone who is HIV-? If so, have you ever had frustrations or struggles with the fact that you are HIV+ and they are HIV-?

add tags: dating problems

view all answers (7)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

Daveb said:

My partner was HIV- and I have been undetectable for over 5 years but I was still very careful . He passed with cancer 7/16/2016 . I have been trying to meet new people, but I live in the country and it is difficult. I am 63 and I am not sure if I can find someonea week . I'm insecure, as I am sure many of us are. I deal with depression daily and with my knees being bad. I was walking at least 3 times a week, and it helped me quite a bit. Now that is not an option and just sitting home alone is not helping . I'm open to any suggestions so look forward to hearing.

Mentioned Users

×

posted 1 day ago  

hug useful? (2)

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Are YOU one of the 6000+ that CVS breached confidentiality and privacy with?

https://www.cnn.com/2018/04/01/health/cvs-lawsu...

https://www.cnn.com/2018/04/01/health/cvs-lawsu...

add tags: #CVS #lawsuit #Breach of privacy

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Fatigue is one of my issues that seems to not be improving over the past 2 years from Crypto Meningitis.

Has anyone else had Crypto Meningitis in the forum? If so how long did it take for you to get back to a normal life or are you still suffering from fatigue?

Has anyone else had Crypto Meningitis in the forum? If so how long did it take for you to get back to a normal life or are you still suffering from fatigue?

add tags: Cryptococcal Meningitis Chronic Fatigue

view all answers (4)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

RobertBiston said:

i've had meningitis and cryptocacous but at seperate times but i did have meningitis along with toxoplasmosis at the same time, i did'nt remember anyone for a week or so, had full blown aids at that time too, i was like a zombie for a few years after that and all i did was eat,gained about 50 pounds more than my usual weight but having to change to a wonderful DR who helped me get myself back together, im back where i belong at around 135-140 and ben attths weight for12 years or ao,

Mentioned Users

×

edited, originally posted 4 days ago  

hug (1) useful? (1)

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove

• add to team
• on team
• add to favorites
• report content or spam
• unmark as spam
• block user from my page

Is a CURE close for HIV? Maybe not - - Ted Talks

Here is a link to some profound research and the obstacles encountered:

https://www.ted.com/talks/edsel_salvana_the_dan...

Here is a link to some profound research and the obstacles encountered:

https://www.ted.com/talks/edsel_salvana_the_dan...

add tags: #HIV CURE #HIV Research #HIV Drug Resistance

view all answers (4)

 

• add to team
• on team
• report content or spam
• unmark as spam
• block user from my page

Rickstar said:

I had no idea that condoms were in such short supply int the Philippines. Maybe I should start importing them. Sounds like a good profit potential.

Mentioned Users

×

posted 5 days ago  

hug useful? (1)

Attach a Photo

Select a photo:

Photo preview not available. Your photo will appear when you post the update.

select a category Fun Events Extracurricular Family life Food Friends Hobbies Pets Reference Career Therapy

Or, create a new category:

Invalid category. A period (.) is not allowed in a category name

attach photo ×

Attach a gif

Click on a gif to attach it

Powered by Tenor

×

Tip: Add an @ sign before a username to mention someone or a business listed on your team!

Photo preview not available. Your photo will appear when you post the update.

remove